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Rank: Member
Groups: Registered
Joined: 2/3/2010
Posts: 20
Location: burnley lancashire
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hello everyone, i'm in need of some help, i'm having a very bad flare up, i hav'nt experienced one like this for a long time, does anyone know the best way to get a steroid injection?? i've spoke to my consultant's receptionist who said there's nothing she can do, the pain is making me sick, and i can feel it moving to other area's, thankyou guy's x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Do you have a helpline number for the rheumy nurse?
Failing that, your GP should be able to give you a steroid jab, so ring the surgery and ask.
I think the consultant's secretary could have been a bit more helpful!
It has been known for people to go to A and E with a bad flare if they can't get help anywhere else so that's another option for you.
Hope you can get some help soon.
Love, Doreen xx
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Rank: Member
Groups: Registered
Joined: 2/3/2010
Posts: 20
Location: burnley lancashire
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thankyou very much, my specialist nurse isn't in today, they said they dont have any kind of emergency clinic, so of to casualty i go, thankyou for your advice xx
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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You're welcome!
I just wish it wasn't so difficult for you to get some help.
Good luck.
Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Hope a big jab of depo helps you! let us know..
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Rank: Member
Groups: Registered
Joined: 2/3/2010
Posts: 20
Location: burnley lancashire
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Poor you, that's rotten waiting for your prescription. I hope when you get it, it makes a difference. It does seem bad that there's nobody you can call in an emergency.
Lyn
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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You are in a bad way, sorry you ve had to go through so much it must be terrible. I times like this support is everything.
Glad you re having the jab tomorrow, let us know how things are going.
Julia x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Hope you feel better tomorrow ,
Sophie x
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Gosh it is horrible when you feel so bad
Get your injection tomorrow and then after a few days will start to kick in
Rose
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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thinking of you tomorrow.
I know when I am in a really bad flare i cannot move at all. But! While you are waiting remember the old fashionned hot and cold treatments.
If a joint is hot- cool it down. If its your hands/ feet. Put some lentils in an old ice cream tub at the back of the fridge and pop your hands in as often as you like.
I have been using some "magi-cool" spray on my knees.
If you can manage a bath do that or see if one of your friends has a hot tub.
I cant do the baths/ hot tubs so a shower is the best alternative.
I also have a paraffin wax bath from boots for hot treatment.
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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And if the above doesn't help, go for the vodka!
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Rank: Member
Groups: Registered
Joined: 2/3/2010
Posts: 20
Location: burnley lancashire
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thankyou to you all, it's been a joke to put it blunt !! still no injection so still the same, i got mt prescription today phoned the doctor's and was told sorry can't fit you in till tomorrow at 10.20, i told her how much pain i was in, and the reply was sorry but we have nothing, so now have to wait till tomorrow, it really does concern me, am i right in thinking that when your having a flare thats when the disease is doing the most damage to your joint's ?? i maybe wrong as i am quite new to all, but i am sure that all you lovely people will have the knowledge, just don't understand why no one is helping me, aswell as being on my own with the kid's due to husband still working away, i just wanted to go to sleep last night forever, sorry for going on, but don't know what to do donna xxxxx
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Rank: Advanced Member Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Sorry to hear all this.
I ve not got a great deal of knowledge, but in your state you should have been given an emergency appointment. It was not down to the receptionist to make this decision, as far as I am aware every surgery has a practice manager where you can turn to if you are not happy. I think the way you have been treated is absolutely appalling and certainly explain all this to the doctor in the morning,
Hope you get through the night, thinking of you.
Julia xx
Julia xx
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Oh Donna, this is not right that you are kept waiting for the injection!
For a start, I can't understand why your GP had to give you the prescription yesterday and send you all over the place trying to get it! Most GP surgeries keep drugs like that in stock, I'm sure. You wouldn't have had to pay for it either if he'd had some in the surgery and given it to you yesterday.
How old are your children, I wonder if your health visitor can tell you how to get some help with them?
Hang on in there for tonight Donna, and I hope you can have the injection tomorrow with no further problems, and when you see your GP ask him for some strong painkillers to help you cope at times like this.
Love and hugs,
Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi Donna, My heart goes out to you at the moment, this is really appalling the way you have been treated. Can't you ask to speak to the doctor or have him call you in between patients, my doctor does that. I do sincerely hope you are seen soon, as Doreen says how old are you children may be the health visitor can help you. Thinking about you Lorna xx 
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 872
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i agree, ask for phonecall from gp you shouldnt ahve to wait in pain. Hope you get some support very soon Love and hugs ~ LIZ XXXXX
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Rank: Advanced Member
Groups: Registered
Joined: 12/5/2009
Posts: 90
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I have just read this and am absolutely appalled by the treatment, you have had.
I was in the same situation over the week-end, phoned my rheumy dept. on monday, and was given a depo the following day. I feel the people you have been dealing with either have no heart or don`t realize the pain, stiffness and fatigue we feel, when we are in a flare. The fact alone, that you also are by yourself with young children, should have been enough for them to act.
I do hope, that you now have had your injection, and when you are feeling better, you should make a complaint to your GP practice and rheumy dept.
Merete
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Rank: Advanced Member Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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You have been treated shockingly, at the very least you should have been given an emergency appt, I think all surgeries have to do that.
I hope by now you've got some relief. I know it will be hard for you to do, but try and rest as much as you can. Do you have a relative who would help with the children?
Lyn
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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In the past, Dawn, when I've been desperaste and there has been "no appointment" I hve gone down to the surgery and refused to leave until I've seen someone.
Sorry you are having all this stress on top of the pain.
Love Jeanxxxx
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